This is a brief update from Sarah's Husband...
Sarah and her operation today, Surgeon said it all went well and to plan - now she just has the recovery!
I am very proud of her.
More news to follow...
Monday, 10 May 2010
Sunday, 9 May 2010
Faith and Strength
One more sleep
Today I woke early and finished arranging my bags - packing and repacking mostly!
At church our lovely minister did a healing service for me and said a lovely prayer. It has given me strength to believe in my faith.
I did however shed a few tears. It was lovely that so many people are thinking of me and praying for me and generally just wishing me well. These are friends that I have only known for 15 months and yet the friendship is so strong that I am happy to leaving my daughter in their care where and when needed. Molly will have an absolute blast over the next few weeks playing with all her friends everyday, she is even asking if she can have a sleep over at several peoples houses already, and is keen to stay at the ministers house!
After church we quickly ran around the shops - having realised that the pj's that I previously bought are not exactly practical considering the operation will be on my pelvis! So 2 old lady nighties later and a rather sweet dressing gown I am pretty all set to go.
This afternoon we are off the farm for some quality family time where we don't have to think or talk about tomorrow.
Now doubt when we return I shall repack my bag, and decide on what else I want to squeeze in there.
Today I woke early and finished arranging my bags - packing and repacking mostly!
At church our lovely minister did a healing service for me and said a lovely prayer. It has given me strength to believe in my faith.
I did however shed a few tears. It was lovely that so many people are thinking of me and praying for me and generally just wishing me well. These are friends that I have only known for 15 months and yet the friendship is so strong that I am happy to leaving my daughter in their care where and when needed. Molly will have an absolute blast over the next few weeks playing with all her friends everyday, she is even asking if she can have a sleep over at several peoples houses already, and is keen to stay at the ministers house!
After church we quickly ran around the shops - having realised that the pj's that I previously bought are not exactly practical considering the operation will be on my pelvis! So 2 old lady nighties later and a rather sweet dressing gown I am pretty all set to go.
This afternoon we are off the farm for some quality family time where we don't have to think or talk about tomorrow.
Now doubt when we return I shall repack my bag, and decide on what else I want to squeeze in there.
Saturday, 8 May 2010
Two more sleeps
Well today has all been about packing bags, buying pj's and dressing gowns and basically getting things organised for my hospital stay.
The hospital phoned yesterday and said in 3 days time I was to be booked in for surgery. That left me in a whirlwind or organising rota's for who would look after Molly and writing lists of things I needed to buy, pack and leave behind for my family.
I have a list of things to buy to take, buy to leave so I can set up recovery room for when I return and things to organise so my husband can run the home without me.
I am concerned he won't know how to use the washing machine, that Molly will go to preschool with no juice, that they will eat frozen dinners every night and that Molly may miss ballet lessons or Sunday school.
None of these things in themselves are a disaster but today they feel like the most important thing in the world.
So I have cancelled friends who were due to visit this weekend, spent far too much money in Tesco this morning, done my last ballet class with Molly for some time, and packed a huge selection of pants, pj's and books in to my hospital bag.
I have written a list of my friends numbers and what days they are having Molly on the table, a list of where she needs to be on what days and by when and a list of things to do during the time I am away. It all feels so final and so scary.
The hospital phoned yesterday and said in 3 days time I was to be booked in for surgery. That left me in a whirlwind or organising rota's for who would look after Molly and writing lists of things I needed to buy, pack and leave behind for my family.
I have a list of things to buy to take, buy to leave so I can set up recovery room for when I return and things to organise so my husband can run the home without me.
I am concerned he won't know how to use the washing machine, that Molly will go to preschool with no juice, that they will eat frozen dinners every night and that Molly may miss ballet lessons or Sunday school.
None of these things in themselves are a disaster but today they feel like the most important thing in the world.
So I have cancelled friends who were due to visit this weekend, spent far too much money in Tesco this morning, done my last ballet class with Molly for some time, and packed a huge selection of pants, pj's and books in to my hospital bag.
I have written a list of my friends numbers and what days they are having Molly on the table, a list of where she needs to be on what days and by when and a list of things to do during the time I am away. It all feels so final and so scary.
Fairground Theory
So the point of this was to explain what my life is like living with PGP. Being in constant pain and limited to what you can do each day is a frustrating and sometimes depressing situation that is hard to explain. New friends and some old ones, just don't understand. I don't look particularly ill so it's easy for people to forget how debilitating it can be. So here is my fairground theory.
Everyone in the world lives with a wrist band. This wristband entitles you to do whatever you please all day.You have full access to whatever you choose to participate in. The whole world is a fairground and you can participate in it as much as you like.
For me I have been given 20 tokens for the day. Each day I am given 20 tokens. When I leave the fairground for the night, I have to hand back any unused tokens, I can't save them up for the next day.
Each daily task in life uses a token, nothing is for free. So getting up and getting showered uses 2 tokens. Walking my daughter to preschool uses 4 tokens - 2 there and 2 back. If I stop at the shop on the way home to get some food shopping I use at least 1 more token
So by 9.30 I have used 7 tokens and have only 13 left. I have to use them wisely, which often means tasks, chores and even the nicest of things sch as going for coffee with a friend has to be missed, not because I don't have the time or the money but I don't have enough tokens left.
By 12 I have done the washing (2 tokens) washed up (2 tokens) and made lunch (1 token).
I have 8 tokens left.
I do some work this afternoon, I have a baby portrait to do. Because I have to get up and down on the floor and move around, I use 4 tokens doing less than an hours work.
I have 4 tokens left - I can't now walk to collect Molly from preschool as I would have no tokens to take her to the park, and make her dinner and bath her. So I drive there to use I token, and leave 3. I take her to the park - use 1 token, leaving me with 2. This is enough to make tea and put her to bed. The bath will have to missed tonight because I have run out of tokens already.
On Monday I am changing in my tokens and hoping for a wristband.
Everyone in the world lives with a wrist band. This wristband entitles you to do whatever you please all day.You have full access to whatever you choose to participate in. The whole world is a fairground and you can participate in it as much as you like.
For me I have been given 20 tokens for the day. Each day I am given 20 tokens. When I leave the fairground for the night, I have to hand back any unused tokens, I can't save them up for the next day.
Each daily task in life uses a token, nothing is for free. So getting up and getting showered uses 2 tokens. Walking my daughter to preschool uses 4 tokens - 2 there and 2 back. If I stop at the shop on the way home to get some food shopping I use at least 1 more token
So by 9.30 I have used 7 tokens and have only 13 left. I have to use them wisely, which often means tasks, chores and even the nicest of things sch as going for coffee with a friend has to be missed, not because I don't have the time or the money but I don't have enough tokens left.
By 12 I have done the washing (2 tokens) washed up (2 tokens) and made lunch (1 token).
I have 8 tokens left.
I do some work this afternoon, I have a baby portrait to do. Because I have to get up and down on the floor and move around, I use 4 tokens doing less than an hours work.
I have 4 tokens left - I can't now walk to collect Molly from preschool as I would have no tokens to take her to the park, and make her dinner and bath her. So I drive there to use I token, and leave 3. I take her to the park - use 1 token, leaving me with 2. This is enough to make tea and put her to bed. The bath will have to missed tonight because I have run out of tokens already.
On Monday I am changing in my tokens and hoping for a wristband.
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