Its frustrating. its saddening and damn right maddening.
Many years ago one of the physios I was seeing spoke to me about applying for disability allowance and disability benefits. At the time I was a little offended. I was so stubborn that this was not a permanent thing that I would get better. This week has been a bit of a shock. It appears that the new pain down my left hand side from back to knee is from a group of muscles working too hard to compensate for the fact that some of my pelvic muscles just dont work. The fear is that this is permanent that where the msucles have been cut through for surgery some have not reattached and no longer work. There is nothing that can be done if that is the case, and although I am in less pain then I was pre surgery and I am happy about that. I would be left disabled and in need of at least one stick permanently. Not so hard to swallow to be honest. Out of all this I have a beautiful daughter. Had I become injured in a car accident I would no doubt find it harder to take. What I do find frustrating is the ridiculous system in place tryign to get disability benefits etc. Its a red taped different world of jargon and reason I can't understand. I kind of wish I had done it all years ago - I certainly would be much better off. I am not particularly good at beign pc so I may offend some people with this. But how can I be disabled. I have only had a baby - almost five years ago. A perfectly nautral act that occurs every day. How has it left me like this.
How do I get benefits? Do I bother? Well yes the money woudl be nice but am I morally entitled to it? I haven't done anythign spectaculor. I haven't been out defending my country on the streets, I haven't been protecting my country and others fighting with sub standard equipment, do I deserve this?
Hi Sarah
ReplyDeleteHow are you doing now? I hope you are progressing. Would love to know what kind of physio support you have had as I seem to have none here and am struggling to progress flowing pelvic fusion in october.
From Sam
Hello Sam,
ReplyDeleteI had a commmunity physio following discharge from hospital who provided me with additional crutches for getting around the house but other than that she wasn't much use. She tried to get me walking upstairs before I was even weightbearing.
I then got to see a physio at the hospital who was slightly better but it wasn't until I saw the same physio I had pre op til I really made progress. My suregon though to be honest seems to think there is no value in the physio but there he is most definitely wrong. I also pushed for hydrotherapy. The exercises didnt really help but the 20 mins floating in a hot pool were lovely. A great source of pain releif. Let me know if you want any more details on what exercises I would recommend. Good luck with your recovery
x
Hi just a quick one to say I find your blog very interesting. Plus helpful to me as a long term pgp sufferer.
ReplyDeleteRegards disability living allowance, yes I would apply for it, I felt the same as you, did I deserve it? But it was pointed out to me I Have no quality of life, no job as my employer of 15 years could not find a suitable role. No help or support at home for me and my family. So why shouldn't I try to get an allowance I may qualify for? I don't think you should be so hard on self regards not having done anything to deserve the money. It is to help you be more mobile and live independantly as possible, your a human being, with a part of you that doesn't work so well, it just so happens to be a huge part of you. Many people may not be fortunate to have money coming in to be able to cope with out the help dla gives. I would have no money to offer my family without it, as I have no job because of spd. I am not saying that qualifies me, but I wasn't in a position to think should I shouldn't I? I had to try and get everything I could, as being unemployed for the first timein my life was terribly hard to except. I plan on being self employed doing something I love, nearly there with business launch so I do believe things happen for a reason. Hope you don't mind me commenting, I will continue to follow your blog as the surgery is something I could face in the future. xxx Steph
Suffering from pelvic symphysis dysfunction recently diagnosis. I'm trying physical therapy to avoid surgery, be honest,I'm afraid the surgery won't let me walk again am I scaring myself for nothing?
ReplyDelete